‎Our Salty Life: Dating Someone With CF On Apple Podcasts

I had no idea what cystic fibrosis was until I met my boyfriend on Bumble in September 2016. We talked online for a week before actually meeting in person. Having no idea what CF was, I immediately went online and started researching it, trying to understand what it meant. Jordan was born with cystic fibrosis, but was diagnosed at the age of 13 when her health problems began to surface. Despite this, she attended the University of Arkansas where she graduated with a B.A in advertising and public relations.

How long do people with CF live?

In severe cases of cystic fibrosis, when the lungs stop working properly and all medical treatments have failed to help, a lung transplant may be recommended. The faulty gene means that some cells struggle to move salt and water across the cell wall. This, along with recurrent infections, can result in a build-up of thick, sticky mucus in the body’s tubes and passageways – particularly the lungs and digestive system. Currently, about half of the people with cystic fibrosis will live past the age of 40. Children born with the condition nowadays are likely to live longer than this. A number of treatments are available to help reduce the problems caused by the condition, but unfortunately average life expectancy is reduced for people who have it.

These tools are designed to open our lungs, get the mucus broken up, and moving around so we can get air behind it and cough it out. This is objectively gross, and something I certainly didnt want my wife to know about or see when we first started dating. My fiancée has CF, and we have been together for 8 years, and we have talked about getting married off and on several times.

We are very young but for our age we have a very strong and serious relationship. I would love to talk to someone who is going https://hookupgenius.com/ through the same things I ambecause I have alot of questions. Also I would like to hear views on dating from those with cf.

Dating Someone with CF

Cystic fibrosis is caused by a defective protein that results from mutations in the CFTR gene. While there are approximately 2,000 known mutations of the CFTR gene, the most common mutation is the F508del mutation. It’s also an opportunity to spread awareness about the common genetic disease that affects more than 30,000 people living in the U.S., she says. “Cystic fibrosis is a part of who people are, but it’s not what they are.” I have been with my boyfriend for about 5 years now.

These thick, sticky secretions plug up the ducts that should carry the secretions either outside of the body or into a hollow organ such as the lungs or the intestines. This can affect vital body functions such as breathing or digestion. The average life span is 44 years for those who live to adulthood. Most commonly, it involves testicular sperm extraction , a technique usually performed in a hospital with sedation. The procedure needs to be timed with the IVF cycle.

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A boundary with a partner with OCD might involve telling them that you will not participate in your partner’s compulsions. For example, you would not wash your hands every time they wash their hands. Establishing boundaries early on can help prevent conflict later on.

Despite the possibility of these complications, some research suggests that the perception of quality of life improves as people with CF get older. The study relied on self-reported data from more than 300 adults with CF. A doctor will consider a person’s quality of life when treating CF. Thanks to advances in treatment and care, people with CF can now expect to live much longer.

It’s okay to cuddle with him in his bed if y’all want to. Physical exercise is important, even when you’re sick as a dog in the hospital. Ask the nurses to give y’all an hour or two to yourselves completely uninterrupted. Just do literally anything and everything to make the hospital stay more bearable. Similar to others it is nice to have people visit, as things do get boring.

The Cystic Fibrosis Foundation Patient Registry tracks people with CF who are receiving care at specialist centers across the United States. Life expectancy for people with CF has increased dramatically over the last few decades. Maybe you’ve pulled an all-nighter in college or stayed out so late once that you went to work without sleeping. Next, you’ll want to learn a few things that can help this go a lot better for both of you.

Why can’t CF patients interact with each other?

It can also contribute to feeling of shame and guilt. It’s important to remember that every person with OCD is unique. Verywell Mind’s content is for informational and educational purposes only. Our website is not intended to be a substitute for professional medical advice, diagnosis, or treatment.